Catherine is hoping that George’s success with the new treatment, known as trametinib, may increase its availability on the NHS.
LCH is a rare condition that affects about 50 children in the UK each year.
Cells that normally protect the skin move to other organs, in George’s case his liver, bone and spleen.
Catherine said her son’s initial diagnosis was “terrifying”.
At the age of about 18 months, George developed a skin rash and by his second birthday, was frequently tired with bad tummy pain.
After several tests, he was diagnosed with LCH and given 12 months of chemotherapy.
